Update on tech problem

Some of you of brought to my attention you have had trouble leaving comments. I adjusted the setting that should fix the problem. If it doesn't contact me via AIM or facebook. I want feedback on what I write and strongly encourage you to leave comments.

I had a BAD day

I had a seizure today, it was my first one since late october. One the of you whom are not famliar with disabilitity related stuff seizures are not good things, having one is the closest to hell on earth as you can get. I didn't use to have seizures, I started having them fall of my senior year of college and no one has been able to explain to me why. In fact they not sure they are really are seizures. I thought I had finally got them under control. Today that kind scatted that myth. Im just so frusted about the entire deal. The worse thing about it was I at the preschool where I volunteer, when happened, and me seizing upset the kids and staff, and generally dispurted everything, something I didn't want to do. The staff was totally thrown they called EMS,was totally unnessary. Which I can't blaim them they not use to that stuff they work mainly kids with Autism and speech delays. It's not like when I worked at the county school where they dealt with that stuff everyday. So I had to play the please Mr. Medic don't transport me game with EMS. This made harder by the fact that when I have one seizure I usually have muitples, which was this time was no exception. So I'm giving these guys a example of what seizures look like while I'm while I'm trying talk them out of taking me to the hospital, it was a nightmare. So my sister comes and helps me run the EMS guys off. As about to leave to come everybody told me told me they hope I felt better and they hope I'm back next Wednesday. It meant alot that they wany me back after all that. They are really good people up there.

Today got thinking many non-disabled people don't want to know about the struggles and hardships disabled face. All they want is the sucess stories, the girl who walked and talked when the doctors told her parent she wouldn't, the popular high school student in a wheelchair, the college graduate with CP and a winning smile. They don't know how hard it was get that sucess. That even now that that you are a "sucess story" your not immune to things like seizures and bathrooming accidents. I feel for disabled people especially kids there to much of focus on sucess. Yes disabled kids should be encouraged to sucess like non-disabled kids, but feel they also need encourage to be happy and to be a good person.

On a positve note I did enjoy my volunteering before the seizures. Working with children bring me nothing but joy and the teacher I'm working with rocks my world, she's great. I've bonded with this boy Gavin,he about 2.5 years he , he has Cerebral Palsy like I do. The PT at the school says I'm a good buddy for him. I just like hanging with him and I think he likes hanging with me.

The good of diapers

I have decided write a entry about diapers a wired topic for blog entry might think, but I feel it is a revelant one. Think abut we all use them as small children. For some disabled people who have issues with incontince diaper usages is life long. One thing I've noticed many disabeld people who not incontinent are starting to wear diapers for various reason. One such reason it is easier then getting out of there chair everytime they use the restroom. Other can't use the restroom alone and don't want be chain to a care provider 24/7 or play the hold it game. The third class of continent disabled diaper wearer is someone who is continent at most times but has accidents and chooses to wear diapers to avoid embrassment and make cleanup easier. I'm a member of the third class. I have stuggled with accidents since toilet training ( and I do mean stuggled) I went back to wearing diapers a couple years ago and it has made things SOOOO much easier. No more worrying about public accidents, no more long clean ups. The diapers I wear pull up and down so if I can get to the toilet I can do my business there. There are people in some circles that frown upon adults wearing diapers. I find ashame. I feel people should by encouaged to wear the underwear there most comfortable in whether that be boxer, breifs, throng, or diaper. When potty training disabled kids I don't think parent should really stress about it. If they are capable of being potty trained fine. But if they're not or if looks like accidents are going to be a serious problem just leave in diapers. There will switch back to diapers by there mid- 20"s anyway. LOL

A word on time and change

I went to church today and there was a reading from the Book of Kings. It was the story of how Ejlah is taken up to God leaving part of his sprit with his student Elisha. It got me thinking about change. Change is the only real constant in life. Nothing ever remains the same. One hundred years from now the world totally different then it is today, just life the world is totally different now then it was 100 years ago



Change can be broken down into two types fast change and slow change. Fast change is like a building being ripped down, you see results immeditely. I remember when Ohio State ripped down the old student union I went by it one day and there it was, and went by there a couple weeks later and there was a hole where the union use be. Fast change doesn't usually make a big difference. It might seem like it makes a difference but it just shock value. The slow change is the change the really makes a difference. Most personal change is slow. Very rarly something will happen that changes who you are as a person. More often all of a sudden you will look back and say whoa I'm not the same person I was 5 or 10 years. Over the years your life exprinces have changed you, it's nothing you planned out. You might be the same at the core but the way you express yourself might have changed. What we exprience in life make who we are. Like if Elisha had not some of the expriences in his life he might not been able take some Ejiah's Sprit. It's funny when a meet follow disabled person we tend to have similiar personally traits, that's because we had simliar life expriences.

I've been thinking about changes in history you can see what led up to certain changes nothing happened overnight. Like the US revolution we didn't just decide in1776 we were going to tell the brits to take a flying leap, there was 20 years worth of events leading up to that. Also the Civil War was brewing back in the 1830"s. There was a big lead up to both World Wars. Granted Pearl Habor kind yank us in to WWII but FDR wasn't playing golf with Hitler and Emarbor of Japan before that either. With the Civil Rights Movement there was a long build up until it climaxed in the 1960's. I've always been interested in time travel, I think it would cool travel back in time to see what it was like. Lately I've watching this show on ABC called "Life on Mars" It's about this cop who gets hits by a car and find himself in 1973. It really cool, I wonder how I would react if something like that happened to me? Anyway, it really late need to go to bed.

Hello Hello

This is my first go at this blogging stuff, so here it goes. I'm 25 and I live in Columbus Ohio. I have condition called Cerebral Palsy which is a caused by a brain injury at or shortly after birth. It main affects my speech and fine motor skills. I have a degree in special education from Ohio State. I do not have a teaching lincense how that occured I will go into in a later entry. The reason I started this blog is I have alot of stuff going on in my head and I think it would do me good to write it down, and why keep a private journal when you post your BS online for the entire world to see. I invison this blog include a wide range of topics disablity related issues politcal issues, music, pop culture, as well as stories from my life past and present. Feel free to comment on tell me what you think. Most of all I hope the blog entertains its readers and get them to think.